Hello everyone! Hopefully everyone is staying safe and indoors during the current COVID-19 pandemic. Due to this situation, a lot of kids around the world have had their definition of school change. For a highschooler like me, this means live video call lectures, using online platforms to submit assignments, and having every aspect of school go digital. If such a drastic change is made for someone like me, what does online learning mean for a special needs child? How has Anjali’s learning through school changed while at home? Let’s dive into these questions.
In my previous post, titled Pandemic Precautions, I covered the educational routine that we have maintained for Anjali while she is home. However, this did not cover what activities the school has planned for Anjali during the shelter-in-place. A few weeks after I put up that post, schools in our area officially switched to online learning for the rest of the year. This prompted Anjali’s teacher to create a comprehensive lesson plan for all the students in Anjali’s class. This involves sending out multiple reading platforms and games to be completed by the child with parental help, regularly sending out video lessons, and maintaining communication with parents in order to keep track of the progress each student is making during this time period. Our school district even provided us with an iPad for Anjali’s learning during this time period! I had also mentioned briefly in my last post that we are voluntarily continuing a few of the ABA, speech, and occupational therapy activities with Anjali, such as making puzzles. Anjali’s therapists have started doing weekly live calls where they conduct activities and check in with the progress of each child. Overall, we believe that both the school and therapists have done a comprehensive job when it comes to maximizing learning for Anjali, but this new routine also requires effort from our ends to make sure online-learning is sufficient for Anjali’s development.
Clearly, Anjali is benefitting from a robust online learning plan implemented by her school and therapists. While thinking about this topic, I realized most special needs children across the country may not have access to such amenities, as I have explained in prior posts such asState Services. What can a parent of a special needs child in that position do? Clearly maintaining an educational routine during this time period is important for all special needs children, since not having any learning for the remaining 3 months of the school year would prove to be disastrous for overall development of any special needs child. In my opinion, the only route a parent can take to maintain learning for their special needs child is setting up their own learning schedule for the child, if the ones provided by school and therapists prove to be inadequate. Many free tools are available for parents when it comes to tutoring special needs children at home, such as Khan Academy and other platforms (no such platform has sponsored this post). Overall, it is clear that during the lockdown many parents with special needs children will have to put in extra effort towards maintaining study routines for their kids, and keeping up with the online-learning provided by schools and therapists.
Hello everyone! This post will be regarding perhaps the biggest news topic of the year. Yes, I am talking about the Coronavirus pandemic. More specifically, I’ll cover what our family is doing to keep Anjali and everyone else safe. Along with this, we will also dive into what our future outlook should be regarding this viral pandemic.
“DO THE FIVE: [wash hands, cough into elbows, don’t touch your face, stay more than 3 feet apart, and stay home if you feel sick]” are the major tips from the World Health Organization. Of course, the recommendation of keeping three feet space is difficult to follow when parenting a special needs child (we are still trying our best though). Besides that, our family is following all these tips in order to maintain hygiene and keep Anjali safe. Touching one’s face is a problem that not only Anjali but any special needs child with sensory needs faces. Instead of her chin, stress relief rubber items always serves a good substitute for Anjali to apply pressure on with her hands. We have also limited the times Anjali leaves home, but not at the cost of her much needed exercise routine. Anjali is still taken for bicycle rides around the neighborhood, but her visits to marketplaces have been stopped. Due to this outbreak, Anjali’s ABA and speech therapy have been canceled for two weeks, along with her school. Not having this work-period badly hurts her daily routine. In order to keep Anjali focused, we have to conduct therapy and academic activities with her. These may involve solving puzzles or completing reading homework with her. These are greatly needed for her to release energy and remain focused during this two week period.
Clearly, the pandemic has greatly changed Anjali’s and our lives, even if only for a temporary period. Due to such changes, many parents might panic about what the future holds regarding the impact of this virus. To those people, I have one word to say: relax. Try to understand your special needs child’s routine, and what parts are altered due to therapy and school cancellations. Try to continue those activities with the child, even though a professional is not there to do it with them. As for hygiene, the same rules apply to all of us. Follow instructions of public health officials, wash your hands, don’t touch your face, and stay away from gatherings. Following these simple rules can keep not just the special needs child safe, but all individuals around us safe.
2019. Perhaps the biggest phase of change Anjali has been through in a year. Perhaps the biggest spike in the development of this blog. Sitting here on the 31st of December, just hours away from reaching a new decade and year, all of these thoughts were passing through my head. This post will serve as a neat summary of Anjali’s journey throughout 2019, and how my documentation of her activities has played a role in our lives.
Let’s start at the beginning. My first post in this calendar year was all the way back in April when we talked about the importance of Vacations for Anjali. I found our vacations to be such beautiful examples of how a child with behavioral and interactive obstacles could still connect with the aura and beauty of a place like Yosemite National Park just like the rest of us. This showed us how important vacations with appropriate precaution can be for a special needs child because they deserve time to unwind just like the rest of us. I then decided to share with you all the public health data about rates of Autism, ASD, Aspergers, and other such conditions rapidly rising. We discussed how being diagnosed under such conditions can be shocking for many families, as was the case for mine as well. Along with this, I shared the amendments made to the diagnostic process and why this is a possible factor in rising data. The attention of this blog once again shifted to Anjali when I had the opportunity to share her progress as a swimmer. This was another post that had an important message about how special needs children should not be treated any differently. They should still have fun in their lives through activities like swimming because at the end of the day they are children after all.
In the latter half of this year, my content’s two categories of personal experiences and data about the special needs community started to blend together. In July I posted about the Job Opportunites our current economy offers for individuals of special needs. Hearing about a specific case sparked this idea in my mind, and I was truly invested in understanding what this big bad world has to offer for these children when they grow up. I think the conclusion of this search was that some opportunities do indeed exist, mostly from people who know a special-needs individual in their lives, but there is certainly room to improve. My next post was about State Services. The idea of government is a funny thing. We feel disconnected by it yet it affects us in every aspect of our lives. Therapy and professional help is the most important aspect of a special needs individuals life, yet so many states have failed to provide a sustainable system. I think the Job Opportunities post and State Services post asks some very important questions. How much does the world pay attention to individuals of disability? Are we recognizing their talents and why are so many of us not caring to the level we should about providing them with their needs?
Reviewing my last two posts of this year helps me cap off this neat summary of the year. Little Einsteins served as a wonderful reminder to all of us that every child has potential in the classroom. The content simply has to be taught to them in a way that suits them, because every child is a different type of learner, especially one with special needs. Sensory Showtime also reminded us all how special needs children are no different, and as long as their needs (or sensory needs in the context of that post) are addressed, they too can partake in the wonders of life such as forms of entertainment. Those thoughts are what I would like to leave you all with as we reach a new decade and year. Thank you so much for coming all with me on this journey so far, and stay tuned for more content in the coming year! Have a great 2020 everyone!
Happy holidays everyone! While a lot of us here in the United States and the western world are bombarded with Christmas decorations and events throughout our local areas, my family was excited about one specific event. Our local mall had a sensory-friendly Santa meetup for kids with sensory needs. Anjali falls under this group of children, and I was very grateful that this community of kids was not excluded from these festive events. Is a sensory-friendly Santa common? What events are sensory-friendly throughout the year? What does it even mean for an event to be “sensory-friendly?” All of these questions popped up in my head and I set out for answers. I hope this post can help family members of special needs children find these events and for others to understand the importance of these events.
First of all, what does it mean for an event to be “sensory-friendly?” A simpler explanation would involve first looking at the word “sensory.” Many special needs children are sensitive to the sounds, lights, or colors of their environment. For example, the bustling noise of people in a mall may seem normal to us but might have an impact of greater magnitude on a special needs child. This is specifically the case with Anjali. Each special-needs child has unique sensory needs. Another example is explained by Jennifer Lovy when she writes for the Friendship Circle Organization about how her son’s sensory-friendly birthday party meant “no loud music, no dark skating rink, and no flashing lights.” The formal definition for a sensory-friendly or autism-friendly event is explained by The Place for Children With Autism as an “environment [that is] . . . moderate and structured. If you’re curious about the environmental accommodations available for a sensory-friendly event, always ask to make sure you or your child’s needs can be met before attending.” With a clear understanding of what a sensory-friendly event is, we can now look at the different options of events throughout the year.
I’ll start off this list of events by making it clear that I am by no means endorsing any of these events. Nor am I suggesting every family should participate in Christmas events. I am simply informing that many entertainment options exist for special needs children. An example of this a sensory-friendly Santa. Business Wire writes about this growing trend and the “partnership between Cherry Hill Programs and Autism Speaks. Together, they are presenting an unprecedented 741 events in 581 shopping destinations across the U.S. and Canada on November 24, December 1 and 8, 2019.” The festive Christmas season isn’t the only time sensory needs are considered for special-needs kids. AMC theaters have partnered with the Autism Society to offer “[a] Sensory Friendly Film program . . . available on the second and fourth Saturday (family-friendly) and Tuesday evenings (mature audiences) of every month. Please check your local theatre listings for specific showtimes.” The Friendship Circle Organization shares more events including “a number of Major League Baseball teams [offering] sensory friendly evenings (often on Autism Awareness Night) . . . [and] local Pump It Up [continuining] to offer sensory jumps once a month”
These events are just the tip of the iceberg when it comes to the amount of sensory-friendly activities across the country. The point I am trying to make through this post is how necessary these events are. We take for granted how our bodies and senses aren’t sensitive to the everyday sounds and sights of the world. These same aspects of society are bothersome to almost every special-needs or ASD child. Despite this, these children still deserve a variety of entertainment options just like us. So the next time you consider watching a movie or going to your local Christmas event I hope you consider options that accommodate for your special needs child. The following is a helpful link to find sensory-friendly events for your child: https://www.autismspeaks.org/events. I hope this article helped others learn about the sensory needs of special needs children and understand the importance of these events. Best of luck to all for 2020!